I have already
written about the painful condition from which I suffer. If I mention it again,
it is not because I want sympathy, but, I repeat, in case someone you know ever
gets the symptoms and has trouble getting
a diagnosis. It happens,
Shortly before
the wedding I got some pain, and since I was at my family doctor, he simply
upped my dose of Tegretol, even though I was pretty sure it was not the
electric pain of Trigeminal Neuralgia. I sailed through the wedding and the
last couple of months. I had a routine visit with the neurologist, told her
about it and said it seemed to be getting better. She handed me off to the
dentist, who could see no problem. Now I do have a problem which involves
eating and talking. If I do not open my mouth, I am fine. I sat by the fire all
weekend. Great unless my meals consisted of things I could drink. Occasional
comments were fine, but for the most part it hurt it hurt too much.
When I wrote
about the kind of blog that repels me, I forgot to mention anything which
mentions “rant.” I feel myself launching into one. My neurologist (I ditched
Boris and got a highly recommended doctor, remember him?) has a large sign just
inside the door which proclaims that the purpose of the practice is to deal
with pain. But a phone call to the office never connects with a human being. My
husband called to make an appointment with the neurologist and was told the
first opening is in May! And when I do go, I will probably meet with a
Physician’s Assistant. Nice women but as Ernie says, “Dr. V*** is not unlike
the Wizard of Oz.” Without meeting with me he prescribed a painkiller, but the
insurance won’t pay without the right paperwork, which the office failed to
supply. If they are so concerned with pain, they must prescribe it all the
time. I finally fought my way through their switchboard and my pharmacy is also
trying to sort this one out, but —O.K. rant ended.
As I was in the
middle of this, I got a call from a friend. His father-in-law has developed
this condition and he needs advice. So it isn’t rare. Be on the look-out for
it.
That sounds horrible and I've never heard of it before. You're entitled to rant and you deserve all the sympathy in the world.
ReplyDeleteThere have been occasions when a blog I have read turns into one about illness, upon the diagnosis of a serious medical condition. In that case, the writer has become a friend and I continue to read it. But I don't search them out. I certainly wouldn't want a blog friend not to write about illness though and would stay with them through bad times as well as good. I do hope you'll feel better soon and can eat and speak normally.
There's nothing worse than continuing pain, no matter what causes it. I also have been left with anything from low grade pain to much worse at times and terrible stiffness of the lower back. I have come off painkillers for now because I don't like the side affects. Sooner or later though, I shall be driven back to them.
ReplyDeleteI hope you manage to get yours under better control.
Maggie x
Nuts in May